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Glioblastoma | Supportive care | Caregivers

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Clarke JJ, Halkett GKB, McDougall E, Dhillon HM, Lobb E, Phillips JL, Hudson P, Nowak AK.
What do carers of people with high-grade glioma perceive could improve their preparedness to care, and what additional support do they require?
Neurooncol Pract. 2024 Feb 16;11(3):296-306. doi: 10.1093/nop/npae015. PMID: 38737602. Observational study˰ ˍ

*Coman DL, Chard MP, Desautels L, Lutz BJ, Minns LA.
What do spouse primary caregivers of patients with glioblastoma want medical providers to know? A qualitative thematic reflexive analysis of letters written by primary caregivers from a secret Facebook support group.
BMJ Open. 2024 Mar 12;14(3):e081783. doi: 10.1136/bmjopen-2023-081783. PMID: 38479741. Observational study. ˍ

Gulino V, Brunasso L, Avallone C, Costa V, Adorno AA, Lombardo MC, Tumbiolo S, Iacopino DG, Maugeri R.
Caregivers' Perspective and Burden of The End-of-Life Phase of Patients With Glioblastoma: A Multicenter Retrospective Study.
World Neurosurg. 2024 Aug 28:S1878-8750(24)01482-7. doi: 10.1016/j.wneu.2024.08.114. PMID: 39214291. Observational study. ˍ

Nordentoft S, Guldager R, Pappot H, Mathiesen T, Tolver A, Piil K.
A Supportive Group Intervention for Caregivers to Patients Diagnosed With Glioblastoma: Protocol for the SUGRI Study.
JMIR Res Protoc. 2026 Mar 11;15:e81948. doi: 10.2196/81948. PMID: 41812182. ClinicalTrials.gov ID: NCT06869577. ˍ